All Blog Posts (4)

My granddaughter, Leah Grace was born prematurely at 28 weeks and had distention in her abdomen upon birth. Immediately air evaced to a hospital NICU in Phoenix, AZ and underwent surgery for ruptured bowel at 2 days old. She was then diagnosed with Cystic Fibrosis and has been in Phoenix Children's Hospital since March 25,2009. If there is anyone that may have a physician that deals with infants that have been prematurely born with ruptured bowel and CF, I would like to hear from you. We are lo… Continue

If you are intersted in hosting a Splash for CF event and need some help, please don't hesitate to contact me. I am here to help you in any way I can. You can reach me at: 205-871-9140 (office) 205-441-6110 (cell) stephanie@lapsforcf.org If you have decided to host an event, please don't forget to add it to the event calendar and post pictures! Thanks so much for support the fight against cystic fibrosis through Splash for CF! -Stephanie Kite Continue

Diagnosed with cystic fibrosis at age nine, Emily was determined to continue her normal routine as much as possible, including being an avid swimmer and member of the Birmingham Swim League. After reading a book about a young girl who raised money for her local hospital by riding her bike, Emily decided she wanted to do something similar to help raise money to support treatment and research as well as raise awareness for cystic fibrosis. Spending four to five days each week at the pool, she fel… Continue

Cystic fibrosis (CF) is a chronic genetic disease where a defective gene and its protein product cause the body to produce thick, sticky mucus. This mucus clogs the lungs, leading to life‐threatening lung infections, and obstructs the pancreas; preventing natural enzymes from helping the body absorb and break down food. Approximately 30,000 children and adults suffer from CF in the U.S., and it is known as the #1 genetic killer of children. Before 1990, very few children lived to attend element… Continue